NUR03 - Impact of New Hemophilia Therapies on Therapeutic Patient Education: A Survey of French Nurses

NUR03

Impact of New Hemophilia Therapies on Therapeutic Patient Education: A Survey of French Nurses

N. GUERIN¹, S. THEROUANNE², O. ROUAULT³, C. Chenuel^4,*, N. A. FIDEL'HEM⁵

¹CTH, CHU CAEN, CAEN, ²CTH, CHU LILLE, LILLE, ³CTH, CHU RENNES, RENNES, ⁴CTH, CHU NANCY BRABOIS, VANDOEUVRE-LES-NANCY, ⁵Nurse association, CAEN, France

 

Introduction: Hemophilia treatment has significantly evolved in recent years, especially with the introduction of bispecific monoclonal antibodies and long-acting prophylactic therapies. These advances change both clinical management and how patients perceive their chronic condition. French nurses have begun re-evaluating their roles in Therapeutic Patient Education (TPE).

Methods: An online questionnaire was distributed to nurses working in Hemophilia Treatment Centers across France. Questions focused on familiarity with new therapies, adjustments made in TPE content and delivery, and the impact on emergency response. Results were reviewed and discussed during a collective meeting

Results: Seventeen specialized nurses responded. All were trained in the new therapies and reported that these innovations have led to significant changes in TPE mainly in updating educational materials and follow-up processes, reflecting patients’ increased autonomy. While the nurse-patient relationship remains strong, patients appear less motivated to engage in TPE workshops.
Nurses perceive patients' understanding of the new treatments as generally good. Patients report improved quality of life and reduced mental burden. Behavioral shifts include increased physical activity and greater risk-taking.
In terms of emergencies, bleeding episodes are now less frequent but patients tend to react more slowly. Two explanations emerged: difficulty in recognizing bleeding symptoms, and limited awareness of new therapies among emergency professionals.

Discussion/Conclusion: This survey shows that French nurses have successfully adapted TPE practices to align with innovative hemophilia treatments. However, delays in the management of bleeding episodes highlight the need for updated TPE modules, focusing on symptom recognition and emergency response. Enhancing disease perception and reinforcing patient education remain key priorities

Disclosure of Interest: None declared